Tuesday, August 18, 2009

Hi All....

Been busy couple of weeks. Back from Chicago. Hanging out in Boston or New Hampshire. Otherwise, going to work, keeping the kids safe and trying to make sure that we remember to do basic needs. :-)

But in the past 2 days, we've been quite busy. Jessica had her follow-up 6month review for Early Intervention. She still qualifies for EI, and here are her scores (she should be all at 25months-her current age): Self care 20months, gross motor 23months, fine motor 21months, social 27months, cognition 26months, receptive language (listening and using her hearing to do things): 23months, expressive language 12months. So basically Jessica is caught up in most all areas except now she's 12months behind her age in EXPRESSIVE LANGUAGE (that is talking). It isn't great news, but it "jives" with what we observe, which obviously means we agree. We will continue Early Intervention and hope that her increasing time in daycare will help her improve in this area.

Today, we had 2 sets of appointments for Alexis. First in Boston for 8am, then in Waltham for 10am. A bunch of silliness if you ask me. But at least we got to both appointments in time. The first appointment was to meet with the Neurology/Sleep Clinic doctors about Alexis' sleep apnea. The doctor was in a seminar until 9am, so that was a real trail on my patience. Otherwise, he wants us to follow-up with an EEG (to check abnormal spikes he sees in her brain activity), follow-up with CPAP usage/fittings, follow-up with Craniofacial doctors at Children's, and probably something else that for sure we can't remember and hope that his report will come out to us quickly so we can do all of the things right.
The second appointment was with Dr Terrell Clark, she is a psychologist that works with Hearing impaired kiddos. She helped to get Alexis in her right placement by describing the educational environment that would be ideal for Alexis. So, this was our return visit (9months later) to see how everything was going. She and Denise (SLP) are hoping that Alexis will develop some more pretend play and symbolics for more than just toys (like using pictures to choose foods, choose what she wants to do, etc). Yep, yep. And it was HOT today.
Alexis and I came home and literally rolled around on the floor after those appointments.
Now both girls are exhausted (already in bed for nearly 1 hour) and I'll be joining them very very soon.
Take good care,
Catherine, Alexis, Jessica & Matt (and the two hot furry cats that were sunbathing in the sun to get even hotter... silly cats)

3 comments:

Kurby Family said...

Sounds like it has been quite the exhausting and frustrating couple of days. Not to mention very hot! You are doing an awesome job of keeping on top of everything though! Hope some cooler weather is on its way up there.

Lisa W. said...

I gotta tell ya, I don't miss those early days of insane appointment schedules ONE. BIT.

(hopefully didn't just jinx myself but oh boy, reading that brings back memories...)

Hua said...

Sounds like you have been really busy.Hope you and your children are staying cool!