We are all doing well. Alexis has been very busy at school and same for Jessica.
They are both growing up so fast, it's hard to believe. We have many fun days with Jessica telling us things like "I had to go into time out at school... (but then no further description)."
And then Alexis is doing so well, it's hard to believe that we struggle with so many things. Friends have been posting "Things to be Grateful" - I can't even stop to process all of the things that we are grateful for when it comes to Alexis, her progress and her health.
One of the great leaders of the CHARGE and Deafblind community posted a .pdf file for Swedish CHARGE group - it was fabulous, I had to stop and write about it and post this on the blog. I hope all of
our friends will see it.
CHARGE officially is an acronym of the typical diagnosis areas: Coloboma, Heart defect, Atresia choanae, Retarded growth, Genital hypoplasia, Ear anomalies
The brochure says:
Cute, Huggable, Adorable, Resilient, Generous, Extraordinary
It is a similar message to this post -http://childrenshospitalblog.org/our-patients-stories-a-is-for-alexis/
- that Alexis is more than her diagnosis, she is more than words on a paper, she is unique, wonderful and inspirational.
Hope you all enjoy,