Rare Disease Day with Diagnosis!

My double rare kids!!

Today is Rare Disease Day! According to Wikipedia, "Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families."
Alexis and Jessica have taught us so much about the medical world and I am blessed to be their mom.
Getting the HDAC8 Deletion diagnosis was a journey but we are there! 

#ShowYouAreRare 

#RareDiseaseDay2019

Cornelia de Lange #HDAC8Deletion Klippel-Feil Syndrome Freedom