My
double rare kids!!
Today is Rare Disease Day! According to Wikipedia, "Rare
Disease Day is an observance held on the last day of February to raise
awareness for rare diseases and improve access to treatment and medical
representation for individuals with rare diseases and their
families."
Alexis and Jessica have taught us so much about the medical world and I am blessed to be their mom.
Getting the HDAC8 Deletion diagnosis was a journey but we are there!
Alexis and Jessica have taught us so much about the medical world and I am blessed to be their mom.
Getting the HDAC8 Deletion diagnosis was a journey but we are there!
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