Alexis Post Op Day 1

We're here at Boston Children's Hospital.  Alexis remained intubated overnight because of the narcotic pain meds that she was one.  Alexis is a bit tricky - with codeine and morphine type drugs, she lowers heart rate, breathing rate and blood pressure.  So it was just safer to keep her airway safe and keep her resting comfortably overnight.

After shift change but before morning rounds, they (along with Alexis' help) took out the breathing tube.  She wore her CPAP for a little bit of time after that.

Pain management team came around and we all talked that Alexis would get valium for keeping her relaxed but then tylenol by IV for pain.  So far that has been managing her pain.  

We then rested a bit, then she wanted to sit up.  She played a little bit and then we were able to start some pedialyte via g-tube on slow-mo.  It's set for 10ml / hour which is like slow slow slow motion, but it's something and it seems to be making her more comfortable.  We've been doing bits of chest-PT as well to clear out any gunk that she might have gotten while intubated.  

Alexis and I cuddled some (and took another selfie).  

Then we both took naps.  

In-patient PT came to visit, so we will see them tomorrow.  Hopefully we can get up into her wheelchair for some wiggle time and maybe even see about leg braces/walking time.

Hopefully tonight will be boring, maybe we'll get to have some Compleat (Alexis' formula) via g-tube.  Then we can see where we go from here.  We have to poop before we leave, but leaving the hospital will be something considered after Monday March 2.  (Our badges say March 10 - hopefully we're not here until then!!)

That's all.

Catherine