Wednesday, February 26, 2020

Surgery #9 - Scoliosis Repair

Alexis had Surgery #9 today at Boston Children's Hospital.

She was here to get her ear canals cleaned of wax, then hearing test done.  Then after these were completed, she started her main reason for surgery - scoliosis repair.  

They were able to insert Harrington rods along her spine (one rod on either side of her spine) from L7 to pelvis.  Her curve prior to surgery was 85%.  There is still a swoop from where her spine was flexible enough to get adjusted into place.  

Here's a photo - before on the Right side, after on the Left side.


She's in the ICU - still intubated and most likely staying that way until tomorrow mid-morning.  She challenged them for intubation and they'd rather her sleep comfortably tonight than to risk extubating and then having to emergently re-intubating.  

Also when she was on narcotics after her cleft palate surgery, she didn't maintain breathing and heart rate well - so having the extra support from the ventilator is good for her body.  I probably won't agree with this decision after mid-day tomorrow and will lobby harder for the tube to be removed.

She's resting comfortably and hopefully will get back to her usual feisty self tomorrow.  

Thanks for all of the thoughts - we are powered by the fierceness of Alexis' fight.  And we can't wait for her to wake up and start giggling.  For now, we wait.


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