Thursday, September 2, 2010

Alexis - Hospital Update - Sleep Study

On Friday, Alexis had a repeat sleep study to see how well she is managing with her CPAP at night.
Alexis HATES sleep studies because they have to put EEG leads on her head and it smells bad, takes time away from sleeping and makes her very grumpy.  And for people that know Alexis, the worst thing you can do is to disrupt her sleep.  So, this video is made by a mean mommy who had to help her endure the process.  At about 50 seconds, she stops her crying and gives me the STARE DOWN to inform me that she did not appreciate this process one bit.  I hope when she's a lot older she'll forgive us for all that we've done to her to help her stay alive.
http://www.youtube.com/watch?v=doXYrlKBI28


Please don't be angry at me for posting Alexis so sad, but I wanted folks to see an example of what she endures....
Catherine

Flying - A Tale of Two Sisters

So, while we were in Lake Placid we took a small airplane ride.  It was a scenic ride through the mountains of Lake Placid.  Well, in the following video you can see ALEXIS having a great time - a big smile and lots of giggles, and then you will see Jessica with no so much interest in the flying.  She is concentrated instead on rolling her seat belt and keeping down her breakfast.  Matt and Alexis had a great time.  Jessica and I tried not to turn green.  It was great fun, just very funny to see the reactions of our two daughters.

http://www.youtube.com/watch?v=SILLQSnxr1M

The Summer Trip to Lake Placid (Aug 2010)

Jessica, Matt and Alexis at Fort Ticonderoga, NY
Jessica and Catherine dressing up in clothes at Fort Ticonderoga. 
Alexis, Matthew and Jessica dressing up quickly (attention spans had waned) at Fort Ticonderoga.
Jessica, Matt and Alexis in an Olympic Bobsled at Lake Placid.  Matt and Catherine actually went down the track in a bobsled -- an awesome fun time!
Matt and Jessica in the Olympic Bobsled Combined Track in Lake Placid.  We got to walk down from the top!  A fun walk, and we didn't let Alexis stroller go :) 
Jessica, Alexis and Matthew waiting patiently for Boat Ride on Lake Placid.  Please OBSERVE how grown up Alexis is sitting and how attentive she is to the camera!!!  Very Awesome!!!
A very windy Boat Ride......
After boats, then PLANES.  A little plane, for a scenic ride above Lake Placid.  For me, a lot better than hiking.  And we were able to see a lot of mountain tops (and hikers).
Alexis had AN AWESOME TIME.  Next post will be the video from the ride!
Then a smaller boat, kind of cold day, and Alexis was SLEEPING on this boat ride.  She was very calm and Dad paddled very well, even though Alexis wasn't a good counterweight to Dad.  I guess Dad will lose a few pounds or Alexis will gain a few pounds.
Some sort of Falls in NY that I forget the name.  Catherine and Jessica being cute at the beginning of the hike.
Matt and Alexis.  Alexis is thinking, "Dad why are we stopped, you know I like for you to walk."
Alexis, Dad and Jessica - trying to prevent Jessica from falling in the river.  A very fun walk!
Jessica was doodling herself to sleep.  She slept the whole ride home from Lake Champlain in Burlington, VT to Methuen, MA.

Thursday, August 12, 2010

Alexis Summer Fun

Alexis touching Alligator at Reptile show at Kimball's Farm.
Alexis smiley at Butterfly Place in Westford.
Alexis is so absolutely huggable, minus the alligator that she is near.... I hate reptiles....
But it seems Alexis enjoyed this alligator better than the bunny.  See her face below regarding bunny.
That is the "I am ignoring you and you can not make me get near that fuzzy thing"
Yep, Alexis gets to have all of the fun!

Tuesday, August 10, 2010

Jessica Reading Story to Daddy before School

Fastest time from Movie to Blog (3 mins).


http://www.youtube.com/watch?v=AS-cKdDeXns

Sunday, August 1, 2010

Family Fun Day at Perkins

Doesn't this look like fun???  Alexis walked the whole parade route - she was a little slow....
But she was very CUTE and LOUD (she was wearing cow bells on her shoes).  Talk about LOUD.  You could probably hear her in Boston (from Watertown)
Alexis and her friend (and her teacher and mom).  She did an awesome job walking!
Here is more walking.  And Jessica is going back to get her to walk faster.
You see that Jessica accomplished her mission to get Alexis walking faster.
Alexis doing some twists while trying to not stand anymore - she was tired of walking!
Alexis & Bridget in the bouncy house.  Alexis was super silly about the bouncy house this time!
Jessica was tossing balls into cups - every so stylish by the middle of the day!
Jessica RUNNING in the bouncy house!  She loved it too!
Alexis would NOT touch the soft little bunny.  She was so "I'm not having anything to do with that...."
She was counting on her fingers all of the reasons not to touch the bunny. 

Jessica - Ball Pit Bathtub Night

Jessica playing in bathtub full of water and ball-pit balls!  Having a fun time!  So sweet when she smiles from ear to ear!